The Annual Case For Inclusion Report: A Look at 2014’s Findings
Thursday, April 17, 2014
Last week, M&L staff wrote a blog that examined the CDC’s latest report on autism spectrum disorder (ASD). We were particularly interested in discussing the latest statistic to come from that report, the estimate that “1 in 68 children in the United States has been identified with ASD.”
We focused on this topic for a number of reasons; firstly, that startling statistic has been all over the news for a few weeks now, and we felt it was important to take a thorough, detailed look at exactly what this new data means to individuals with ASD and their families. Secondly, we decided that in honor of Autism Awareness Month (April 2nd to April 31st) we would devote that blog, and the rest of the blogs in April, to doing our part to further autism awareness.
We still fully intend to write two more blogs devoted to ASD awareness, blogs that focus on headlines and events relevant to individuals with ASD and the organizations that serve them. In the last week, however, another report was released that is also incredibly important to individuals with ASD, and, in fact, all individuals with intellectual and/or developmental disabilities (ID/DD): the United Cerebral Palsy’s annual The Case For Inclusion Report.
In light of the release of this document, we have decided to use this week’s blog to focus on the information to come out of the report. We will return to our original plan to focus on ASD awareness next week, with a blog that will focus on the latest changes to the DSM’s definition of ASD. So, please join us as for a brief discussion and summary of the findings of The Case For Inclusion: 2014.
What is the United Cerebral Palsy Association and The Case For Inclusion Report?
Regular readers may remember that M&L published a blog last year on The Case For Inclusion Report: 2013. In that blog, we briefly discussed what the United Cerebral Palsy Association (UCP) is, and how their annual The Case For Inclusion Report helps individuals with disabilities, their families, and the organizations that serve them. To read this blog in full, please click here. For the purposes of this blog, however, we will provide some brief background info on the UCP and the report.
The UCP is a group that “educates, advocates, and provides support services to ensure a life without limits for people with a spectrum of disabilities.” The The Case For Inclusion Report, which has been released annually since 2006, is a document that provides a snapshot of the performance of individual states in regards to the Medicaid programs/services offered to Americans with ID/DD. Most importantly, it ranks states according to their performance on a number of “key indicators”, and also in relation to each other’s performance.
According to the data released by the UCP, all states do have room for improvement in the way that they deliver services to individuals with DD/ID. Despite this consistent need for improvement, the UCP does identify several states that have ranked consistently near the bottom since 2007 – those states are Arkansas, with a ranking of #47, Illinois at #46, Mississippi at #51 and Texas, with a ranking of #50. The best performing states come from big and small states, rich and poorer states, high and low tax burden states, and big and low spending per person states – a true mix.
Some important information to take away from this report includes the fact that 38 states now meet the 80/80 Community standard, (80 percent of all individuals with ID/DD are served in the community, and that 80% of all resources spent on these individuals are for community support); this figure has not changed from the 2013 report. It is also important to note that in the 2013 report, 13 states had no state institutions to seclude those with ID/DD. In the 2014 report, that figure is up to 14 – and, another 11 states had only one institution each.
As well, the 2014 report shows that waiting lists for residential and community services are high and show the unmet need – this has not changed from 2013’s findings.
Highlights (as taken straight from the report)
- 18 states now meet the 80 percent Home-like Setting standard, (at least 80 percent of all individuals with ID/DD are served in settings such as their own home, a family home, family foster care or small group settings like shared apartments with fewer than three residents). The U.S. average for this standard is 77 percent.
- Six states report at least 10 percent of individuals using self-directed services
- 39 states participate in the National Core Indicators (NCI) model, a comprehensive quality-assurance program that includes standard measures to assess outcomes of services
- Only 15 states were supporting a large share of families through family support
- Just 10 states have at least one-third (33 percent) of individuals with ID/DD working in competitive employment.
- 13 states report successfully placing at least 60 percent of individuals in vocational rehabilitation in jobs.
Top and Bottom States
The top ten states are ranked as follows:
Arizona is the top ranked state, at # 1, followed by Michigan, Hawaii, Georgia, New York, South Carolina, Maine, Massachusetts, Ohio, and Missouri at #10.
The bottom ten states are ranked as follows:
Mississippi at the bottom of the list, with a ranking of #51, with Texas at #50, Virginia, Oklahoma, Tennessee, Indiana, Arkansas, Illinois, Utah and Iowa at #42.
What is this report important, and how can it help me?
As we wrote last year, this report is important because it provides essential, concise, and accurate information to individuals, organizations, and governmental departments as to the strengths and weakness in the way that the states deliver services to individuals with disabilities. This information can be used solely for educational purposes, to help identify where services should be added and which services are working, and/or to examine the ways in which funding and support dollars are allocated. The UCP has another purpose in mind for the report as well – advocacy. In fact, the UCP urges people to use this report and its findings in their own, individual advocacy efforts.
To read the results of The Case For Inclusion: 2014 in full, please visit the report’s website. If you would like more information as to how The Case For Inclusion Report will affect you or your family member with an intellectual or developmental disability, please do not hesitate to contact us. We are experts in the field of financial and life planning for individuals and families with special needs. We are available to help you every step of the way, from the first steps to creating a Comprehensive Special Needs Financial Life Plan, to helping your loved one achieve independent living with our housing development initiatives and Independent Living Program and Housing Project Database. For more information on the services we provide, please take a moment to visit our Services webpage, or browse through our Workshop Series.
Thanks so much for taking the time to visit our blog today – don’t forget to drop back next week for our continuation of ASD awareness. From all of us at M&L, have a great holiday weekend!
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