1993, I had my first child at GW Hospital in Washington DC. Ellie was
immediately diagnosed with a syndrome called OFD Type 1. Oral-facial-digital
(OFD). Ellie’s OFD was created by a gamatic mutation. With this syndrome there
are many medical and cognitive challenges. At the age of 15 Ellie had a kidney
transplant and we continue to have medical challenges.
the beginning of an unexpected journey that had no roadmap. Ellie is now sixteen
years and attends a special needs school in Montgomery County.
working as a Certified Financial Planner® (CFP) and being Ellie’s true
advocate, I have gained a unique understanding of the challenges facing special
needs families. Because of this experience, I have decided to devote my life
and career to helping others prepare and plan for each stage of life from
diagnosis through the inevitable death of the main caretaker.
hope others can learn from me and that I can help alleviate some of the fear,
grief and worry.
in mind, I have developed a series of workshops to share my knowledge in an
organized fashion. Click here to view these workshops.
forward to hearing your stories and questions.
Leave a Comment